Why me?No matter how lasting or fleeting, it’s a question that we instinctively ask ourselves—myself included. But why? Perhaps the reason many of us open the can of “why me?” is because there is so much we have yet to learn about a disease with no known cause, no early detection, no predictable path of symptoms, stages, …
Silence: A Missed Opportunity for Education?
My mouth is dry. My heart is pounding. I'm beginning to sweat. No, I'm not about to perform on a stage or give a speech to a roomful of people... and yet... everyone is looking at me—not at him—waiting, expecting me to do something. Or are they? I've just arrived at a small get together, hobbling in with …
Continue reading Silence: A Missed Opportunity for Education?
Dear Cat…
July 1, 2013 Dear Cat, Look at you sitting there, tapping your feet and fidgeting with your hands in that cold, grey exam room. You’re moments away from receiving medical confirmation of that little monster that has been haunting you over the last few months, probably years: You have multiple sclerosis. But you already know that. Even so, hearing …
Out of Sight, Out of Mind
“I am invisible, understand, simply because people refuse to see me.” -Ralph Ellison, “Invisible Man”I’m 5 foot 8. Half of my head is shaved. I wear bold makeup and jewelry. I’m hard to miss. And yet somehow, I have managed to (quite literally) stumble upon the secret to attaining one of the superpowers I’d mentioned in another article I'd …
Flying My Fatigue Flag
I tried not to make eye contact with her in the elevator while I pushed the button for the floor directly above us. I knew that it was bound to happen sooner or later, and I hoped that by not looking at her, she wouldn’t engage. But it did happen. It only happened just that …