My Meeting With Madame President and My Thoughts on Ocrevus

I recently had the honor of meeting with Colleen Kalt, President and CEO of the National Multiple Sclerosis Society-Wisconsin Chapter, so that she could hand deliver my Big Cheese shirt (Big Cheese=the top 100 fundraisers in the state–something you’ve helped me accomplish each of the three years I’ve done WALK MS so far) this year and hear my story! She’s so empowering and I cannot wait for what is in store for me this fall. 😉

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New BFFs

Speaking of fundraising, it’s that time of year again and I’m excited to be walking alongside fellow MSers and our allies for the fourth year in a row! We have just under a month and about $2,800 to go! Year after year, you’ve helped me obliterate my goal for WALK MS—please consider helping me smash it again this year. Every dollar truly makes a difference in research and treatment options for people living with multiple sclerosis (like me!).

We’ve seen the results of this recently, when the FDA approved the first drug ever to treat primary progressive multiple sclerosis (!!!) and that has also been shown to stop the disease in people with relapsing-remitting multiple sclerosis (!!!). That’s a huge victory for all of us and is a result of your support.

Also! Do you own a small business? I’m looking for sponsors by Friday, April 14—please contact me for info! I also am seeking sponsors for this year’s team t-shirts!

My personal WALK MS fundraising link: Click “Donate to Cat”

Last year’s WALK MS:

 

My thoughts on the newly-approved drug for RRMS and PPMS:

 

From the bottom of my heart, thank you for supporting me.

 


Hey! I’m on FacebookTwitterInstagram, and YouTube. Follow me for updates and musings between blog postings!

You can also read articles I’ve written for the National Multiple Sclerosis Society here!

Want to get updated when I post a new blog entry? Enter your email address in the field on the right side of your screen and get treated to an email alert when I post here! How modern!

Questions, comments, or love letters you don’t feel comfortable posting in the comments below? Email me at itsonlyabruise@gmail.com.

A Mother’s Touch

This summer really flew by, didn’t it? This year’s heat and humidity seemed to make a pretty noticeable difference in my day-to-day–more so than the last few summers. Or maybe it seems that way because it’s still so fresh in my mind.

I went in for a routine visit with Dr. Brain last week and, while my fancy sobriety test-esque exam went well, he told me precisely what I didn’t want to hear.

Continue reading “A Mother’s Touch”

Let’s SMASH it!

We’re almost there! My husband is riding in his first BIKE MS this weekend. He’s really jazzed about it and is really taking to heart that the pain, fatigue, exhaustion, heat sensitivity, and even bladder urgency that he will experience during and after his ride is just a small taste of what we MSers experience every day.

He’s SO CLOSE to his inaugural goal of $1000, but is now also offering up a challenge. On top of riding the already ambitious 100 miles over the course of two days, if we can help him raise $1250, he’ll ride a total of 125 miles. If we can get him to $1500, he’ll ride an insane 150 miles over the course of two days. On a bicycle.

Every single dollar truly makes a difference in advancing research and treatment options for us. He’s riding for each and every one of us. This is truly a ride of love.

Please consider helping him smash his goal by donating. You can do so by clicking here.

If for nothing else, do it for that fabulous beard.

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Hey! I’m on FacebookTwitter, and Instagram. Follow me for updates and musings between blog postings!

You can also read articles I’ve written for the National Multiple Sclerosis Society here!

Want to get updated when I post a new blog entry? Enter your email address in the field on the right side of your screen and get treated to an email alert when I post here! How modern!

Questions, comments, or love letters you don’t feel comfortable posting in the comments below? Email me at itsonlyabruise@gmail.com.

Just To Be The Man Who Biked One Hundred Miles…

Many of my “longtime” (and I use that term loosely) readers remember my response to the “This Bike Has MS” video that was circulating several months back and I’d invite you to read it again. My only real critique of this inspirational video was that it only addressed what it would hypothetically be like to ride the altered bicycle, and not for any extended length of time. How can one get a small glimpse into living with the disease without truly experiencing the bike?

My handsome husband, while not riding the altered bike that was featured in “This Bike Has MS,” is taking the challenge. He’s registered for this year’s BIKE MS and will be riding 100 miles over the course of two days.

One. Hundred. Miles.

I realize we’ve only fairly recently closed our annual WALK MS campaign, but I’m here to humbly ask you if you might consider helping him reach his fundraising goal for his first ever BIKE MS event.

He realizes the toll this will take on his body. He will be fatigued. His joints will ache. He will have no choice but to push on. Just like us. He will feel the after effects for days.

And so will we, fellow MSers, because every single dollar you are able to contribute will go toward the advancement of research and treatment options for us.

He’s doing this because so many others cannot. He’s doing this to genuinely get a feel for what we go through every day. He’s riding for us.

You can help him reach his goal by following this link and clicking on “Donate to Russell.”

 

 

If nothing else, do it for his spectacular beard. I mean, look at that thing.

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Hey! I’m on FacebookTwitter, and Instagram. Follow me for updates and musings between blog postings!

You can also read articles I’ve written for the National Multiple Sclerosis Society here!

Want to get updated when I post a new blog entry? Enter your email address in the field on the right side of your screen and get treated to an email alert when I post here! How modern!

Questions, comments, or love letters you don’t feel comfortable posting in the comments below? Email me at itsonlyabruise@gmail.com.