This is my friend Krysa Skaramagos-Leedy. My last words to her were: "On your brain???" She assured me that she wasn't worried. She was optimistic and upbeat. As usual. And now, just over a month later, she's gone. I choose to remember Krysa as the friend who spent hours on the phone with me during the …
I recently had the honor of meeting with Colleen Kalt, President and CEO of the National Multiple Sclerosis Society-Wisconsin Chapter, so that she could hand deliver my Big Cheese shirt (Big Cheese=the top 100 fundraisers in the state--something you've helped me accomplish each of the three years I've done WALK MS so far) this year …
Continue reading My Meeting With Madame President and My Thoughts on Ocrevus
To wrap up Multiple Sclerosis Awareness Month, I thought I'd do something a little different and hand the floor off to someone who is very much aware of the effects that MS can have on a person and their relationships: my husband. Caregivers are often overlooked and need just as much support (if not more) as we do. …
What did I do wrong? What could I have done differently? How could this happen? What did I miss? We ask these questions in the wake of local or national tragedy. We ask them when our children misbehave. We ask them when we suffer a financial loss. And we ask ourselves these questions when we hear …
Traveling with MS, for me right now, isn't terribly inconvenient. As long as I make sure I carry snacks and water, plan out activities with naps and recovery time factored in, pack clothing that's appropriate for a wide range of weather, and ensure that I have refrigeration for my medication, I'm all set. Easy! I'd …
Continue reading Gentle People with Flowers in Their Hair: My Trip to San Francisco
it's only a bruise. 