I recently had the honor of meeting with Colleen Kalt, President and CEO of the National Multiple Sclerosis Society-Wisconsin Chapter, so that she could hand deliver my Big Cheese shirt (Big Cheese=the top 100 fundraisers in the state--something you've helped me accomplish each of the three years I've done WALK MS so far) this year …
Continue reading My Meeting With Madame President and My Thoughts on Ocrevus
To wrap up Multiple Sclerosis Awareness Month, I thought I'd do something a little different and hand the floor off to someone who is very much aware of the effects that MS can have on a person and their relationships: my husband. Caregivers are often overlooked and need just as much support (if not more) as we do. …
What did I do wrong? What could I have done differently? How could this happen? What did I miss? We ask these questions in the wake of local or national tragedy. We ask them when our children misbehave. We ask them when we suffer a financial loss. And we ask ourselves these questions when we hear …
Traveling with MS, for me right now, isn't terribly inconvenient. As long as I make sure I carry snacks and water, plan out activities with naps and recovery time factored in, pack clothing that's appropriate for a wide range of weather, and ensure that I have refrigeration for my medication, I'm all set. Easy! I'd …
Continue reading Gentle People with Flowers in Their Hair: My Trip to San Francisco
Last week, I had the honor of being contacted by Jen Powley, an amazing and inspiring woman who has spent nearly her entire lifetime battling an aggressive form of progressive multiple sclerosis. She is a quadriplegic, is catheterized, and is on a feeding tube. She had the opportunity to write a memoir and asked if …
it's only a bruise. 